I chased up my Rheumatology referral today after the deadline that they were supposed to call back arrived and they hadn’t called me. For those that don’t know, I had four positive autoimmune tests, plus I also have my existing chronic pain and chronic fatigue, both with no known cause. (previous blog post) I got … Read more
After my autoimmune tests came back positive for four different things (previous blog post), I had another test for liver functions, B12 and folate. The tests came back with B12 and folate being ok, my liver tests came back with most being ok and Serum alanine aminotransferase level being “borderline”. Now these tests were because … Read more
Updated 5th NovemberThey now have sent out more conflicting information regarding Christmas slots with 2 emails with different information on both! Information below. ASDA recently said it was supposed to be free delivery over £40 from November, below that there would be delivery and minimum basket fees.Well, now they are trying to go back on … Read more
After spending YEARS trying to get more blood tests for my chronic pain and chronic fatigue, I finally got my GP to send me for autoimmune tests!I have had chronic fatigue for 30 years roughly and chronic pain for around 12 roughly, both which got dramatically much more severe in the past few years, and … Read more
If you read my blog or Twitter, you will know that I can’t get ESA due to not having paid enough National Insurance Contributions due to having worked part time before being unable to work anymore, which was below the hours needed to pay NI contributions. By pushing myself to work as long as I … Read more
I was incredibly angry to read that the NHS in the UK will be spending £10 million funding “long covid” clinics in every area for those that have fatigue after having COVID and even more money for National Institute for Health Research research, plus also they get different advice to those of us with CFS. … Read more