I told the dermatologist my concerns about having oral medication that affects your immune system for my hidradenitis suppurativa whilst currently trialling pain medication plus having chronic fatigue, as I know dapsone is not that effective for HS plus makes you tired and can give you aches and pains.He agreed it can make me more … Read more
I have my dermatologist appointment tomorrow for my skin condition Hidradenitis Suppurativa which has no cure. I have tried lots and nothing works. There is Humira which is the only treatment proven to do anything which is weekly injections but they can’t prescribe it, I would have to go to another city every week for … Read more
The day after I increase the dose of my Fentanyl patches, I am always sick. I feel terrible and out of it then throw up, even after taking anti-nausea medicine – I just puke those up. You would think if I feel like this then the pain would get better too, but nope. Fingers crossed … Read more
I saw my doctor again today as I do every two weeks, and again Fentanyl dose increase to double what I am currently on. So now on 50mcg Fentanyl (Matrifen) patches, and the codeine that does nothing as needed for “breakthrough pain”, although breakthrough pain is constant really as the patches only do a very, … Read more
Another horrible day filled with so much pain. From the moment I open my eyes on a morning, it is nothing but severe pain. I can’t even sit in a chair with no pain, I can’t even get comfy and sit for long at all. The only place comfortable is bed. I dread each day … Read more
I spend so much time in bed I sometimes wonder why I bother getting up. Bed is the only place I have minimal pain and I’d great when I feel fatigued or nauseous too. Love bed! I come here numerous times in the daytime due to pain and fatigue, and come to bed early as … Read more