Having chronic fatigue (CFS), I should be able to get a free flu vaccine every year but I don’t!Why? Because doctors, nurses and other people read the eligibility but as they don’t see CFS/ME written there, they say you aren’t eligible. YOU ARE!CFS/ME are neurological conditions which DO qualify for a free flu vaccine. The … Read more
Every day is such a battle. A battle with health, money and just life. I wake up at 11am with my alarm otherwise I would sleep all day due to chronic fatigue plus the opioids and amitriptyline! I struggle to get up and feel like I haven’t slept even though I have had 11 hours. … Read more
Does the NHS not care about “reasonable adjustments” as per the equality act? Doesn’t seem to seeing as they don’t let you go to closer clinics when you are disabled and housebound!They are supposed to provide reasonable adjustments just like any other company is supposed to. Sadly they don’t always and in my experience, have … Read more
Recently I have a few updates about rheumatology, MRI, PIP and medical crowdfund. Rheumatology I was seen in Rheumatology again due to my abnormal autoimmune blood tests. The doctor this time spent 3 minutes total telling me my skin is ok and then took me out of the room while I was still talking to … Read more
Being chronically ill and disabled and also on social media a lot, I get to be the target of trolls quite often.Every month I get some hate/abuse/trolling from people that target people who are disabled or chronically ill. Anyone that knows me, knows I am very strong willed, some anger issues, don’t get upset easily.I … Read more
I desperately need your help. I am chronically ill, housebound, unable to work and in extreme pain every second of my life. I run out of my painkiller that works well for me. It is unavailable on the NHS and I have tried everything on the NHS already including the strongest of all painkillers. I … Read more