This is a list of things not to say to people with a chronic illness. Why? Here are a few reasons! We see our doctors very frequently, I for example speak to my doctor every 2 to 4 weeks (yes that frequent!), and they know better than you. Some of us have had this for … Read more
Had my telephone appointment with my doctor this morning to see how I was getting on with the patches at 60 hours. I thought I would update here at the same time Basically the chills and sweats the night before I placed my patch at 72 hours has pretty much gone, although when I change … Read more
You hear a lot about an “opioid crisis” going on, but this has a lot of misinformation and it is hurting chronic pain patients.People are lead to believe that opioids in general are killing people and cutting back on prescribing them is the way forward. This is simply NOT true.The fact is that nearly all … Read more
Currently trying my Fentanyl patches every 60 hours. In the past I tried every 48 hours which got rid of the withdrawal between patches, but left my temperature all over the place and I am more sleepy. Only had 2 patch changes so far at 60 hours, and as expected the withdrawal (chills and sweating … Read more
I thought I would go through that support I get from the government as I think some will be shocked because I know I am. I can’t work due to my disabilities and I claim PIP due to the severity of my chronic illnesses.I “don’t qualify” for Universal Credit nor ESA! I have checked on … Read more
As you know I get withdrawal on the Matrifen as it runs out too quickly as I possibly absorb it quicker than some people and I get the chills, sweats and restlessness the night before I change my patch. The Clonidine I was given for withdrawal has stopped being as effective which speaking to others … Read more