Be careful if you get advice from Citizens Advice, I was given completely wrong information from a benefit “specialist”. As you know, all I get is PIP. I can’t get any other benefits.Last week I got a letter dated just before Christmas which was my PIP review. It was extended until August 2022 but they … Read more
As you know, I have tried getting a flu vaccine from my GP for many years. I thought I was now on the list with my latest attempt, but apparently not!Here is information about why you are eligible for a flu vaccine free in England if you have CFS/ME and also my experience a bit … Read more
Update: This has been delayed until a price arrangement can be agreed on but they are still going ahead with it, just no price or ETA as yet! Please continue to fill in the feedback form and petition below to give your feedback to Drug Science about the price rise. Medical cannabis prices on Project … Read more
I thought I would write a little post with an update about everything that has been happening recently in an end of year update for 2021. Pain My chronic pain has been getting worse and new pains have developed. I now have tendonitis in my foot too. He didn’t look at them so this is … Read more
As you know, I am housebound and barely ever see outside these four walls, other than for medical appointments. I hate it and being stuck inside is a horrible feeling.I have no freedom. No independence. I had to start a crowdfund for an electric wheelchair (also called a powerchair) as I really need to be … Read more
When people read that I get just over £300 a month total income from a disability benefit, many people often think you aren’t claiming all you can and they reply and tell you about other benefits or extra discounts you can get. When I reply that I am not eligible, some people don’t understand you … Read more