As you know, I am housebound and barely ever see outside these four walls, other than for medical appointments. I hate it and being stuck inside is a horrible feeling.I have no freedom. No independence. I had to start a crowdfund for an electric wheelchair (also called a powerchair) as I really need to be … Read more
Having chronic fatigue (CFS), I should be able to get a free flu vaccine every year but I don’t!Why? Because doctors, nurses and other people read the eligibility but as they don’t see CFS/ME written there, they say you aren’t eligible. YOU ARE!CFS/ME are neurological conditions which DO qualify for a free flu vaccine. The … Read more
Every day is such a battle. A battle with health, money and just life. I wake up at 11am with my alarm otherwise I would sleep all day due to chronic fatigue plus the opioids and amitriptyline! I struggle to get up and feel like I haven’t slept even though I have had 11 hours. … Read more
Recently I have a few updates about rheumatology, MRI, PIP and medical crowdfund. Rheumatology I was seen in Rheumatology again due to my abnormal autoimmune blood tests. The doctor this time spent 3 minutes total telling me my skin is ok and then took me out of the room while I was still talking to … Read more
If you didn’t know already, I have a FAQ which answers all the questions I get asked the most. If you have any questions check this out as all the usual question and answers are there. I have the page as it hurts and is very energy draining to type so if I can minimise … Read more
I have decided to crowdfund via JustGiving for medical cannabis for my severe debilitating 10 out of 10 chronic pain without painkillers (around 8-9 with Fentanyl), migraines and sciatica as it’s impossible for me to afford on £300 a month income when I can’t work and struggle to get by as it is. If you … Read more