When I spoke to the doctor recently on my 3 weekly review, I also mentioned my chronic fatigue (CFS/ME) again. This is one that even after decades of having this, doctors just brush it off like I am just a bit tired when I am actually unbearably struggling to keep awake and so exhausted all … Read more
I initially wondered why I wasn’t diagnosed with Fibromyalgia seeing as I have chronic pain plus chronic fatigue, but there are some differences as to why it isn’t Fibromyalgia. I have suffered from severe pain for decades and only got a diagnosis in the last few years which was diagnosed as just “chronic pain” as … Read more
This is a list of things not to say to people with a chronic illness. Why? Here are a few reasons! We see our doctors very frequently, I for example speak to my doctor every 2 to 4 weeks (yes that frequent!), and they know better than you. Some of us have had this for … Read more
Currently trying my Fentanyl patches every 60 hours. In the past I tried every 48 hours which got rid of the withdrawal between patches, but left my temperature all over the place and I am more sleepy. Only had 2 patch changes so far at 60 hours, and as expected the withdrawal (chills and sweating … Read more
I thought I would go through that support I get from the government as I think some will be shocked because I know I am. I can’t work due to my disabilities and I claim PIP due to the severity of my chronic illnesses.I “don’t qualify” for Universal Credit nor ESA! I have checked on … Read more
This is an insight into my daily life which I find very depressing and monotonous.A typical day for me is I wake up around 10-11am but I lay there until I can get the energy to get out of bed which is 10.45-11am or a little after but I try to get up by 11am … Read more