I am spending so much time in bed. I normally spend a lot there due to pain and fatigue, but now I am spending even more there just to get comfortable. I have an incredibly uncomfortable living room chair which I spend most of my time in. Unfortunately it is making my pain worse as … Read more
The doctor made a huge mistake.Had my telephone appointment and I said maybe I should stay on this dose 2 more weeks to see how I go. It doesn’t touch the moving pain but helps the idle pain but also runs out of the day you change your patch. Don’t really want to go on … Read more
I told the dermatologist my concerns about having oral medication that affects your immune system for my hidradenitis suppurativa whilst currently trialling pain medication plus having chronic fatigue, as I know dapsone is not that effective for HS plus makes you tired and can give you aches and pains.He agreed it can make me more … Read more
I saw my doctor again today as I do every two weeks, and again Fentanyl dose increase to double what I am currently on. So now on 50mcg Fentanyl (Matrifen) patches, and the codeine that does nothing as needed for “breakthrough pain”, although breakthrough pain is constant really as the patches only do a very, … Read more
Another horrible day filled with so much pain. From the moment I open my eyes on a morning, it is nothing but severe pain. I can’t even sit in a chair with no pain, I can’t even get comfy and sit for long at all. The only place comfortable is bed. I dread each day … Read more
I live with severe pain and fatigue 24/7 due to my Chronic Pain and Chronic Fatigue. I don’t get out of the house other than for doctors appointments due to it being too painful and difficult. I am only in my 30’s and have had all these conditions for decades. Every day is a struggle. … Read more