I was incredibly angry to read that the NHS in the UK will be spending £10 million funding “long covid” clinics in every area for those that have fatigue after having COVID and even more money for National Institute for Health Research research, plus also they get different advice to those of us with CFS. … Read more
One thing that a lot of people seem to not realise is that pain levels vary between people and severities in chronic pain. Just because you have chronic pain and so does the next person, that doesn’t mean your pain is the same as theirs! Pain levels vary dramatically.You can have chronic pain and it … Read more
Every day I struggle in numerous ways. My health is so bad that I have to force myself out of bed as even after 10-11 hours sleep I am so utterly exhausted and fatigued that I could just keep going back to sleep, but I have to get up to take my medication so I … Read more
When you’re chronically ill, your wish list often looks much different to someone who is not chronically ill.Some items you may see on chronically ill peoples wish lists and not realise why they have it there, so this might help.Here are some examples from what a few chronically ill people including myself want or have … Read more
Being housebound, chronically ill and disabled means that you either have to get help getting groceries from the supermarket or have to get them delivered. During the COVID pandemic, I have been unable to get delivery slots. This is still an issue where I live to this day even though the lockdown has currently been … Read more
When I spoke to the doctor recently on my 3 weekly review, I also mentioned my chronic fatigue (CFS/ME) again. This is one that even after decades of having this, doctors just brush it off like I am just a bit tired when I am actually unbearably struggling to keep awake and so exhausted all … Read more