Had my fortnightly telephone appointment with the doctor. He was in such a rush on the phone.He wanted to increase my Fentanyl patches so now I am on 75mcg but I said if I want to go down can I without side effects and he said yes but who knows as I know how your … Read more
I am spending so much time in bed. I normally spend a lot there due to pain and fatigue, but now I am spending even more there just to get comfortable. I have an incredibly uncomfortable living room chair which I spend most of my time in. Unfortunately it is making my pain worse as … Read more
The doctor made a huge mistake.Had my telephone appointment and I said maybe I should stay on this dose 2 more weeks to see how I go. It doesn’t touch the moving pain but helps the idle pain but also runs out of the day you change your patch. Don’t really want to go on … Read more
I told the dermatologist my concerns about having oral medication that affects your immune system for my hidradenitis suppurativa whilst currently trialling pain medication plus having chronic fatigue, as I know dapsone is not that effective for HS plus makes you tired and can give you aches and pains.He agreed it can make me more … Read more
The day after I increase the dose of my Fentanyl patches, I am always sick. I feel terrible and out of it then throw up, even after taking anti-nausea medicine – I just puke those up. You would think if I feel like this then the pain would get better too, but nope. Fingers crossed … Read more
I saw my doctor again today as I do every two weeks, and again Fentanyl dose increase to double what I am currently on. So now on 50mcg Fentanyl (Matrifen) patches, and the codeine that does nothing as needed for “breakthrough pain”, although breakthrough pain is constant really as the patches only do a very, … Read more